12:03:49 names. 12:03:49 Ok, Jason. I will let you take it 12:03:52 from here. JASON KLAZON: 12:03:55 Thank you Heather, and thank you everybody for 12:03:58 joining us today. 12:04:03 I have been invited here to really try to 12:04:07 give you some information about who I 12:04:09 work with, UCF-CARD, as well as talk to you a 12:04:13 little bit about what is autism 12:04:20 . Go over some of the 12:04:23 specifics behind autism, and give you all a 12:04:25 chance to maybe ask some questions, if you have 12:04:29 some questions pertaining to any of the 12:04:31 information that I go over today. I do have a 12:04:35 PowerPoint I want to share just to kind of go 12:04:38 over some of this information. I will stop 12:04:41 a couple times,. We have a nice small 12:04:44 group, looks like. 12:04:46 We will go over questions, but the best 12:04:49 way to handle it will be if you have a question 12:04:53 on your mind at the time, if you wouldn't 12:04:56 mind putting it in the chat, that would be 12:05:00 great. Otherwise, because we 12:05:01 have such a small group, when we have those 12:05:04 stopping points, if you go ahead and ask your 12:05:08 questions then, if you want to open your my cup 12:05:11 and you are able to do so, we can use that 12:05:15 route 2. Once again, because we 12:05:17 have this small group. With that said, I'm 12:05:20 going to go ahead and start sharing with you. 12:05:23 Hopefully everybody can see this ok. 12:05:28 Are we get together? 12:05:32 HEATHER THEOBOLD: Yes. 12:05:36 JASON KLAZON: Alright. Once again, what I would 12:05:39 like to talk about first is who we are at 12:05:43 card, and 12:05:51 UCF-CARD. And then we can move on 12:05:53 to talk a little bit more about autism. What 12:05:57 is this CARD 12:06:03 saying some of you have heard about before? We 12:06:06 are the center for autism and related 12:06:09 disabilities. We are funded through a 12:06:11 discretionary grant. One of several 12:06:16 discretionary grant projects that receive 12:06:18 funding through the Department of Education. 12:06:20 And part of what that means to families and 12:06:24 professionals who contact us, is that for 12:06:26 consultative services, there is no charge. 12:06:30 We are all about answering questions you 12:06:33 have pertaining to your child's ASD 12:06:49 or related disability, and all about trying to 12:06:52 collaborate with communities out there as 12:06:54 well to partner up with folks who are wonderful 12:06:57 folks here at the Brevard public school 12:07:00 system as well as our private providers out 12:07:03 there. We feel that by doing 12:07:05 that, it will build capacity. It will get 12:07:08 information out to the people that it really 12:07:11 needs to. We do our best to stay 12:07:13 up on the latest and greatest in the world of 12:07:17 autism spectrum disorders, but sometimes 12:07:19 it is easier said than done, because this 12:07:22 information can move really quickly at times. 12:07:24 I will share some information coming up 12:07:27 here. We are all about getting 12:07:29 information out,, getting out programmatic 12:07:31 gaps, and I 12:07:38 find it useful to do so as we are collaborating 12:07:42 with some of our community-based 12:07:44 partners. There are some really 12:07:45 good ones out there. This is a breakdown 12:07:48 of... We are one of seven 12:07:51 discretionary projects through CARD, we are 12:07:53 there UCF Center for autism and disability. 12:07:55 Each CARD 12:07:58 offices is affiliated with a state-funded 12:08:00 university out there. 12:08:08 The reason I show you this graphic is because 12:08:11 we know that sometimes we have people who need 12:08:14 to move around in Florida for one reason 12:08:17 or another, so if, let's say you signed up with 12:08:21 our center and your job may be to Q2 South 12:08:24 Florida, I wanted to make sure that you are 12:08:28 aware that there are CARD centers and those 12:08:30 areas as well. You wouldn't necessarily 12:08:33 be working with us, but with one of our sibling 12:08:36 CARD centers. This is a breakdown of 12:08:39 our region. We cover a seven county 12:08:41 region 12:08:45 . Obviously, Brevard is my 12:08:47 main county that I cover, I actually live 12:08:49 in Brevard myself. I hope to cover a small 12:08:53 portion 12:08:54 of the southeast of Volusia County. 12:08:56 Throughout our seven county region you see 12:08:59 here, we are coming up on almost 18,000 12:09:02 constituents that 12:09:04 we are serving, and of course, their families 12:09:07 and support systems. So our numbers continue 12:09:09 to grow and have continued over the past 12:09:12 several years. 12:09:18 These are the diagnoses that full under ASD, you 12:09:21 will hear me refer to that a lot. Any of these 12:09:25 particular 12:09:26 diagnoses that fall again under the autism 12:09:28 spectrum disorder umbrella so to speak 12:09:30 would qualify 12:09:31 for our services, but keep in mind, we are the 12:09:35 center for autism and related disabilities 12:09:37 so under the related disabilities portion of 12:09:40 our title, 12:09:42 we get some other diagnoses that fall 12:09:45 under that. Diagnoses such as 12:09:47 childhood 12:09:52 disintegrative disorder, rets syndrome 12:09:54 and one that people are not really aware of. If 12:10:01 a child is considered to be clinically deaf 12:10:04 and clinically blind, and there is information 12:10:07 and reports to back that up, more than likely 12:10:10 they will end up qualifying for the 12:10:13 centers 12:10:15 services as well. Or, another little 12:10:17 caveat here, let's say the child has been 12:10:20 diagnosed as being clinically deaf, and 12:10:22 they have a secondary developmental or 12:10:24 neurologic based disability, does it 12:10:30 doesn't have to be related to autism, it 12:10:33 could be Down syndrome or cerebral palsy to 12:10:35 name a couple. But again, the key piece 12:10:38 is going to be 12:10:40 for them to have that documentation that they 12:10:43 are considered to be clinically deaf, 12:10:45 clinically blind, and then have that secondary 12:10:47 developmental or neurological disorder. 12:10:49 Our center, and really all the CARD 12:10:51 centers across the state operate under what 12:10:54 we like to call for main areas. 12:10:57 Starting at the far left, are 12:11:05 individual family assistance area. This is 12:11:07 the one that, again, concerns most of our 12:11:10 families. So if you are a family 12:11:12 member signed on here, this is typically where 12:11:15 families end up contacting our center, 12:11:17 or they get signed up with us somehow. I will 12:11:21 share that information towards the end, how to 12:11:24 do so. 12:11:27 This is where we have probably the most direct 12:11:31 contact with our families or our 12:11:33 constituents, because we do serve all ages. At 12:11:36 times, we have adults that sign up for center 12:11:39 services so we can communicate directly 12:11:41 with our adult constituents. We can do 12:11:44 a variety of things. Obviously, phone 12:11:46 consultation, Zoom consultation. 12:11:47 Face-to-face – thank goodness we can do 12:11:50 face-to-face stuff again. Most of us at our 12:11:53 center were certainly missing that. 12:11:57 But things such as education seminars or 12:11:59 Q&A type sessions like we are doing today, just 12:12:03 to name a few things under that category. If 12:12:06 we move to the right under perf 12:12:10 -- professional education. This is where 12:12:12 we most often work with professionals who reach 12:12:15 out to us. They might be seeking 12:12:18 some classroom or school based training. They 12:12:20 might also be looking at putting together some 12:12:23 in-service based information. I have been 12:12:26 out to several schools in the past where I have 12:12:29 been part of their in-service process. 12:12:31 Here's through CARD, we also have our annual 12:12:34 conference that takes 12:12:44 place, typically the second or third weekend 12:12:47 in January. The last few years it's 12:12:49 been in the third weekend. That has been 12:12:52 going on... I think we are coming up 12:12:55 on our 30th year, soon. Moving over to the 12:12:58 technical assistance category, this is where 12:13:01 we can work with you more directly with 12:13:03 teachers or classrooms or maybe certain schools 12:13:09 , or exceptional student education department 12:13:11 within a certain school. We narrow our focus 12:13:16 usually a bit more on technical assistance. 12:13:19 And what we see here is as long as we can 12:13:22 justify that we have some students in this 12:13:25 case that have autism spectrum disorders 12:13:28 , they don't necessarily have to be signed up 12:13:31 with our center, but we know that they have 12:13:34 autism spectrum disorders are one of the 12:13:37 other qualifying 12:13:39 related disabilities, we can usually justify 12:13:41 going ahead and working with them through a 12:13:44 technical assistance area or category 12:13:50 . The final far right 12:13:52 quick category that we operate in, I will go to 12:13:55 Volusia County tomorrow to a school to provide 12:13:58 some public awareness, but what we are doing 12:14:01 today is considered public awareness for us 12:14:04 as well. It is where we get a 12:14:07 chance to talk about CARD 12:14:09 , to talk about autism. We have a website I will 12:14:13 share with you. Another way that we get 12:14:16 the word out about us and autism 12:14:18 . But the way -- event I'm 12:14:21 going to tomorrow in Volusia County will kind 12:14:24 of be a fair style that is set up. I 12:14:27 participated in the transition fair here in 12:14:30 Brevard about a month and 1/2 ago. This is 12:14:33 usually where we get to 12:14:37 they will have a table or a play set up for us, 12:14:41 and this is where parents and other 12:14:44 professionals get to come around and we get 12:14:47 to talk to them and again spend a little 12:14:50 one-on-one time with you and/or small group time. 12:14:53 And once again, share information, or as much 12:14:56 information as we can. Like I said, we are 12:14:59 funded through the state, so we have some 12:15:02 things we can 12:15:03 not do. One of the things we 12:15:06 cannot do is we are not equipped to handle 12:15:09 emergency crisis situations. Even things 12:15:11 such as parents that will contact us and they 12:15:14 will have something going on within the 12:15:17 moment. To be truthful with you, 12:15:19 it depends what our schedules look like 12:15:25 whether or not we will be able to talk to them 12:15:29 about what is going on. We are not set up and 12:15:33 equipped to handle that. We do not provide any 12:15:36 direct therapies or case management services 12:15:50 . We really don't provide 12:15:52 any types of direct services. We are more 12:15:55 about education, consultation. We are 12:15:57 definitely not legal or educational advocates, 12:15:59 even though we do sometimes or this from 12:16:02 individuals, and at times, again, depending 12:16:04 on our schedule and the schedules flexibility, 12:16:07 we can maybe come to school meetings, IEP 12:16:10 meetings, stuff like that. Once again, it 12:16:12 depends on our schedule, but we can act as -- we 12:16:16 cannot act as a legal advocate if we attend 12:16:19 that meeting. We are there for 12:16:22 support. We do not provide 12:16:23 medical advice or diagnoses, even though 12:16:26 our director is 12:16:27 a psychologist and could in private 12:16:29 practice, but under guidelines through the 12:16:31 state, we are not able to do that. We work 12:16:35 through the state, so financial assistance is 12:16:38 off the table. In fact, every year, we 12:16:40 are always keeping our fingers crossed to make 12:16:43 sure we keep our funding up and going to the 12:16:47 level that we needed. We are certainly not 12:16:50 going to try and duplicate any types 12:16:52 of... Whether it is 12:16:54 state-funded services... Or... This is my 12:16:56 personal preference, I will meet with families 12:16:59 all the time and they will ask for advice on 12:17:02 service or type of therapy, and I am always 12:17:05 ready to let them know what I know about that 12:17:09 type of therapy or service. However, if I 12:17:12 feel things are going well, I will not try and 12:17:16 trample on any toes there or trying to 12:17:18 duplicate any of those services. So these are 12:17:21 some of the things we can and cannot do. I 12:17:25 just wanted to pause here really quick. I do 12:17:28 not know if we have any questions. I can 12:17:32 actually see the chat. HEATHER THEOBOLD: We had 12:17:34 one, but it was a direct message. We are waiting 12:17:38 to share... It was asking about, 12:17:40 again, welcome to you that have joined us. But 12:17:44 it was earlier, when you mentioned some of the 12:17:47 services and they posted 12:17:51 , "I have been on a waiting list for a long 12:17:55 time now. Do you know when I will 12:17:58 be called?" JASON KLAZON: It depends what 12:18:00 the waiting list is for. I will take a guess that 12:18:04 maybe you are on the 12:18:07 (indiscernible) waiting list through the agency 12:18:10 for persons with disabilities. There 12:18:11 shouldn't be a waiting list for us. Our center 12:18:15 services are usually pretty quick to kind of 12:18:18 get things up and going. But it really depends on 12:18:21 what that waiting list is, if you happen to 12:18:24 remember, maybe you could type it in the 12:18:27 chat. HEATHER THEOBOLD: Feel 12:18:29 free. Now is a time to either 12:20:26 again, as long as you guys live here in 12:20:29 Brevard, and I assume you probably do, you 12:20:32 will get set up with kind of a one-on-one 12:20:35 consultation. And I have a feeling I 12:20:37 might be able to guide you with some better 12:20:41 answers once we are able to do that. SPEAKER: Ok, 12:20:44 thank you. JASON KLAZON: You are 12:20:47 welcome. HEATHER THEOBOLD: Thank 12:20:48 you for taking the microphone and being an 12:20:51 advocate for yourself and asking those 12:20:53 questions. 12:20:57 Ok, that was the only one I have seen, and she 12:21:01 was very patient and waited. JASON KLAZON: 12:21:03 Thank you. Thank you, that was a 12:21:06 great question. And I know the services, 12:21:09 like I said, it can be a challenge sometimes to 12:21:12 be on those weightless, but I like to tell most 12:21:16 of my families, especially for APA, go 12:21:18 ahead and get on as many weightless as he can, 12:21:22 because you never know. Unless they are telling 12:21:25 you when it is going to happen, you never know 12:21:28 which one they end up taking you on first. 12:21:32 Alright, with that set, I will put into the next 12:21:35 section, and talk to a bit about autism. I know 12:21:39 some of you are probably very well versed in 12:21:42 autism spectrum disorders. Others may 12:21:44 not, so I will keep it as basic as I possibly 12:21:48 can. I want to really talk to 12:21:50 you about what is autism spectrum disorder. We 12:21:53 hear this term, it is definitely a little more 12:21:57 prevalent out there, nowadays. Really, it is 12:21:59 a developmental disorder. And it is one 12:22:02 that is neurologic based, so it often 12:22:04 affects a person in what we like to call to core 12:22:08 deficit area. The first being that of 12:22:11 social communication, social interactions. The 12:22:13 second being that kind of restricted, 12:22:15 repetitive type interests and behaviors. 12:22:17 I will break those down further for you. 12:22:21 When a person is seeking testing or 12:22:23 evaluation for their loved one, their child 12:22:26 with autism spectrum disorder, 12:22:30 I will first speak to the medical diagnostic 12:22:33 model 12:22:38 . That would be kind of 12:22:40 you getting that private diagnosis, as opposed to 12:22:43 maybe the educational diagnosis. 12:22:46 I will try and match the two as much as I can 12:22:50 hear as well. What they are saying is 12:22:53 these diagnosticians or evaluators that are 12:22:55 conducting the testing are looking at 12:23:01 that first core deficit area in social 12:23:03 communication, social interaction, and they 12:23:05 are using a testing model but typically, 12:23:08 they are probably most comfortable using. Based 12:23:10 on that testing model, they are looking at 12:23:13 three sub criteria's most specifically, there 12:23:15 looking to see how well does this individual or 12:23:19 this child share information? 12:23:25 How well can they communicate? How well 12:23:27 can they express needs and wants? How well can 12:23:31 they understand needs and wants of others? 12:23:33 There looking at 12:23:34 expressive and receptive language. They 12:23:36 are also looking at how well does the individual 12:23:40 either express or use nonverbal cues, and how 12:23:42 well do they understand nonverbal cues or 12:23:45 gestures of others? Can the final 12:23:47 subcategory they tend to look at is that of 12:23:50 relationships. How will this an 12:23:52 individual develop and maintain relationships. 12:23:54 At and improve. 12:23:55 -- At an appropriate level. 12:24:04 It is not necessarily based on the 12:24:07 chronological needs, but based more on the 12:24:09 developmental level. They often kind of look 12:24:12 about information. That is the first core 12:24:14 area they are looking at. 12:24:18 And sorry, I kind of clicked it too fast. All 12:24:22 of these have to be present. That was a big 12:24:26 change that came about with the newest revision 12:24:28 for those of you who have heard of the 12:24:32 diagnostic and statistics manual, fifth 12:24:33 edition of mental health disorders, text revised. 12:24:37 That is usually the manual that they are 12:24:39 storing all this information in and 12:24:42 referring to when they are going through these 12:24:44 tests. All of these sub areas 12:24:47 have to be prevalent 12:24:53 . Now, when we get into 12:24:55 the second core deficit area, that restrictive 12:24:58 repetitive behavior area or category, what they 12:25:00 are saying here is we have four sub criteria, 12:25:04 but only two or more needs to be present. So 12:25:07 if we only have one, or they are not showing any 12:25:11 signs, then a person, technically shouldn't be 12:25:14 receiving a diagnosis of autism spectrum disorder. 12:25:16 So what they are saying these are, the first one 12:25:20 being, again, those repetitive behaviors. 12:25:23 It could be motoric in nature, it could be 12:25:26 verbal in nature where they are repeating words 12:25:29 or sounds. Anything, again that is 12:25:31 just repeated over and over again is what they 12:25:35 are saying here. They are also saying a 12:25:37 person may have 12:25:39 excessive adherence to routines. For our kids, 12:25:47 they will learn the routine, and all of a 12:25:50 sudden there is a change and the routine is 12:25:54 broken. How will they deal with 12:25:56 that? Kids with autism, for 12:25:58 sure, not so well. 12:26:06 That third area is the highly fixated interest 12:26:09 area. They may show an 12:26:10 abnormal intensity for a subject. I know some of 12:26:14 the ones that I have come across in the past 12:26:17 just to name a few, I have several young men 12:26:21 and ladies that were really interested in 12:26:24 ceiling things, and they were much younger, so 12:26:27 probably five or six years old. Not many five 12:26:30 or six-year-old so that interested in ceiling 12:26:32 fans. I just talked to a mom a 12:26:35 couple weeks ago. Her mom -- young 12:26:38 teenager 13 or 14 was very interested in 12:26:41 elevators. He knows everything 12:26:42 about elevators. Just to name a few of 12:26:45 those, again. Sort of unusual topics 12:26:47 for that age group. And then they are also 12:26:51 looking at whether or not the individual is 12:26:53 experiencing sensory reactivity of any type. 12:26:56 Again, they're kind of looking outside of what 12:26:59 would be considered the normal realm. They are 12:27:01 looking at are they hypersensitive to maybe 12:27:04 touch? Are they hypersensitive 12:27:06 to stimuli in the environment? If all of a 12:27:10 sudden somebody came in the room and yelled 12:27:13 , "Fire! Fire! We need to get out 12:27:19 !" And they didn't react at all, that would be 12:27:23 hypersensitivity to that particular situation. So 12:27:25 they are looking at those four 12:27:27 subcategories and saying you need two of 12:27:30 those for a diagnosis of ASD. 12:27:39 I wish the DSM five TR had this graphic. 12:27:42 Unfortunately, it does not. It's all black and 12:27:45 white and has a lot of text. But if you were 12:27:49 able to open up the manual fifth edition, 12:27:52 text revised, you would have all this broken 12:27:55 down into text. Really what they are 12:27:57 saying regarding the category of autism 12:27:59 spectrum disorder is they are saying, number 12:28:02 one, it is a broad category. We do have 12:28:05 individuals that get diagnosed 12:28:07 . We know that they 12:28:09 require varying levels of support, so they 12:28:11 broke it down into three levels of support. 12:28:15 All the support is based on those raindrops 12:28:18 that you see here on our screen. Those are our 12:28:22 two core deficit categories that I just 12:28:24 spoke about. So based on those 12:28:26 categories, and the test and evaluation pieces 12:28:29 that they use, when a person is diagnosed with 12:28:32 an ASD, they put them either at level I, level 12:28:36 II or level III. 12:28:40 All level one individuals are usually 12:28:42 individuals that we know they will require some 12:28:45 outside support, but probably not a whole 12:28:48 lot. So these are folks that 12:28:50 more than likely used to be considered Asperger's 12:28:53 or higher functioning autistic individuals. 12:28:59 Level II individuals are folks that, again, 12:29:02 they are probably going to require more support 12:29:05 than our Level One individuals, but 12:29:07 probably not as much support as our level 12:29:10 III. Our Level 3 individuals 12:29:11 are folks that require what I like to term 12:29:15 probably round-the-clock support. They will 12:29:16 require support in just about every area of 12:29:19 their lives. Pretty significant 12:29:21 support. 12:29:25 Again, when a person gets an ASD diagnosis, 12:29:27 they are going to get put into one of this 12:29:31 level 12:29:35 are categorical levels of support. Just wanted 12:29:37 to make sure everybody understood this. Once 12:29:40 again, that is our medical model. I will go 12:29:43 back to the slide real quick. That is based on 12:29:47 our medical model. When you're looking at 12:29:50 an educational diagnosis, the medical 12:29:51 model 12:29:53 often looks a little more holistically at the 12:29:56 individual. What I mean by that is 12:29:59 they are looking at the individual, how well do 12:30:02 they do, all these different things at 12:30:04 home. In the community, at 12:30:06 school. When you are looking at 12:30:08 more of an educational diagnosis, you are 12:30:11 looking at the individual as a student 12:30:13 within that school, possibly within that 12:30:16 school district. So sometimes, I know, 12:30:18 that is where these models differ a little 12:30:21 bit. I talked to parents 12:30:22 pretty frequently about those differences, 12:30:24 because once in a while, a child may have a 12:30:28 medical diagnosis of ASD but they may not modify 12:30:31 for an educational diagnosis, because they 12:30:33 are not meeting the full criteria on the 12:30:36 educational side of things. So I just wanted 12:30:39 to throw that in there and make sure everybody 12:30:42 was understanding that. 12:30:44 I also want to share prevalence he rates with 12:30:47 you guys. This is according to the 12:30:50 Center for disease control. They have been 12:30:53 a pretty active bunch of the past couple of years 12:30:56 with our COVID stuff. But believe it or not, 12:30:59 they are keeping up with autism and other 12:31:02 disorders and disabilities out there 12:31:04 as well. They currently say that 12:31:06 one in every 44 children in the US today have 12:31:10 ASD. That number just jumped 12:31:12 from one in 54 to 1 in 44 just this past 12:31:16 December. Keep in mind, this 12:31:18 information or these prevalence he rates are 12:31:20 also based on their statistics and 12:31:22 research-based information, to play 12:31:32 -- typically from two – three years ago. When 12:31:36 you think of it like that, we are looking at 12:31:39 it here in 2022, so we are looking at 12:31:42 information probably back from 2019, maybe 12:31:45 the beginning of 2020. So in actuality, our 12:31:47 rates could be higher at this point in time, but 12:31:51 they have to base it on something, so again, 12:31:54 just wanted to explain that so everybody had a 12:31:57 good info understanding of where they get this 12:32:00 information from. The CDC is saying that 12:32:03 typically for – find four – five individuals 12:32:06 who are male 12:32:15 get diagnosed more than female. Genetically 12:32:18 speaking, males because they have the XY 12:32:20 chromosomal makeup that is probably why they get 12:32:23 diagnosed more frequently. And then you 12:32:25 have other people that say it is not so much 12:32:29 based on genetics. It is just maybe the 12:32:32 testing itself. It's may be cured more 12:32:35 towards catching some of the more expected 12:32:37 behaviors of males as opposed to females. Like 12:32:40 I said, there is still a couple different 12:32:43 theories and camps of thought out there. One 12:32:45 thing we know about autism, is it knows no 12:32:49 bounds. We see it in all racial 12:32:51 backgrounds, ethnic backgrounds and social 12:32:53 economic groups, for sure. For some of you 12:32:56 who may have younger children or some of you 12:32:59 may be professionals working with not 12:33:02 -- younger kids and they are not necessarily 12:33:05 diagnosed. You may be on the 12:33:07 lookout for some of these early signs. How 12:33:10 can I initially detected my young child that 12:33:13 maybe we have autism spectrum disorder going 12:33:15 on? 12:33:17 We know that there is no physical signs. So 12:33:20 it's not as if you can just look at a person 12:33:24 without observing behaviorally what they 12:33:26 are doing and say for sure that they have 12:33:29 autism. We also know that we 12:33:31 really do not have any genetic-based tests or 12:33:35 blood tests or really any types of what we 12:33:38 would consider traditional medical 12:33:39 tests to say for sure that ASD. We still have 12:33:43 to rely on behavioral 12:33:44 observations and the development of the 12:33:46 individual, which often, that kind of comes back 12:33:49 to our parents. So you all who are 12:33:52 parents of children with autism or suspected 12:34:03 autism, when you go through that testing 12:34:05 evaluation process, often you are asked a 12:34:08 ton of questions. You are as much a part 12:34:11 of the process as her child being observed 12:34:14 behaviorally, because they want to see when 12:34:17 did some of these behaviors develop or 12:34:19 start? With all of the updated 12:34:22 testing and evaluating out there these days, it 12:34:24 has become a lot more reliable. Over the past 12:34:28 couple of years, I have seen many more children 12:34:31 get signed up with our center at maybe the age 12:34:35 of two – three years old. Once again., 12:34:39 I've been doing this for about 16 years, and 12:34:42 it was almost on a normally when I started 12:34:45 to see a child signed up that young or having a 12:34:49 diagnosis that young. So it speaks to all the 12:34:52 research and testing that has been done and 12:34:55 taken on up there. There of 12:35:05 -- different screenings out there. Usually what 12:35:08 they are doing is taking a 10 – 15 minute 12:35:12 snapshot of the individual. They may 12:35:14 actually sit with you and your child, let's 12:35:17 say. And they might observe 12:35:18 your child based on those core deficit areas 12:35:21 that I talked about earlier, and ask you 12:35:24 several questions based on their developmental 12:35:26 schedule, did they meet certain milestones? And 12:35:29 their job isn't necessarily to diagnose 12:35:31 an individual with ASD, there job is more or 12:35:35 less to give you some clues based on what they 12:35:38 know about the more comprehensive 12:35:40 evaluations and testing that is out there. 12:35:42 Usually these screeners, when they get to a point 12:35:46 where they feel like they have seen enough, 12:35:48 and they do have enough of the observed 12:35:51 behaviors or information leading them to think 12:35:54 that maybe this child has ASD, maybe 12:35:59 they will refer you to get a more comprehensive 12:36:02 evaluation. Typically those more 12:36:03 comprehensive valuations are done by either 12:36:05 clinical psychologists or, as you can see up on 12:36:09 the screen here, at times, we have some 12:36:12 developmental types of pediatricians or 12:36:13 neurologists who feel comfortable enough and 12:36:16 licensed and certified 12:36:17 to provide testing. Once again, very often, 12:36:20 my experience leads me to believe that most 12:36:23 often it is clinical psychologists. 12:36:25 So I wanted to kind of further breakdown 12:36:30 , again, based on these early signs that people 12:36:33 might be looking for as to help them decide 12:36:45 if their son or daughter has ASD. I want 12:36:49 to break these categories down further. 12:36:51 Some of the more common social communication 12:36:53 challenges that you might notice is if your 12:36:56 child starts... They are talking about 12:36:58 things, and they are may be lacking expression in 12:37:02 their voice. For instance, just as an 12:37:04 example out there, 12:37:17 a young man may have autism, and may have 12:37:20 just had a big birthday party that he was 12:37:23 anticipating for weeks. He comes to school the 12:37:26 next day and the teacher asks, "How was your 12:37:29 party last night?" And she already talked to 12:37:32 mom and dad and knows it was really exciting. And 12:37:36 he just says deadpan, "It is great." Again, he 12:37:39 is telling you that it was great, but many of 12:37:42 us are judging him on that expressive part of 12:37:46 his language. If that emotion or 12:37:48 inflection isn't there and doesn't line up with 12:37:51 the phrase he is saying, we may misinterpret. Of 12:37:54 course folks with autism very often misinterpret 12:37:57 the tones and nonverbal cues of others who are 12:38:00 trying to communicate with them as well. 12:38:04 This is a key piece with our folks with 12:38:07 autism, they are often very literal thinkers 12:38:10 and processors. They often think of the 12:38:13 world in very black-and-white terms. 12:38:14 So if you present something to them, you 12:38:17 might want to think about how you are 12:38:20 presenting it to them, because they could 12:38:23 misinterpret it. Or if you are using 12:38:25 sarcasm or something where you are saying 12:38:28 something, but you are really implying 12:38:30 something else, they may end up missing that. So 12:38:33 those are some of the more common social 12:38:36 communication challenges. Some of the 12:38:38 more common social interaction challenges 12:38:40 often involve many of our folks with autism 12:38:43 also have some form of anxiety going on in 12:38:46 their life. Like I said, autism is 12:38:48 brain-based. It often affects and 12:38:50 individual 12:38:51 . Really, their abilities 12:38:52 to use their executive functioning skills, 12:38:54 their abilities to kind of keep themselves 12:38:57 organized, to understand that when I am going 12:39:00 into a social situation, there are unwritten rules 12:39:04 , often, that I need to follow, depending upon 12:39:07 the social situation of course. Some people feel 12:39:10 a little more comfortable with 12:39:15 ... Folks without autism, 12:39:16 you will act more differently than you 12:39:19 would act in a more professional situation. 12:39:22 We know they have 12:39:23 a difficult time picking up on social 12:39:26 cues or using those pragmatic language 12:39:28 skills, is what we like to call them. 12:39:31 Were trying to decide before we go into this 12:39:34 social situation what I should say, what I 12:39:37 should do, how I should say it, and so on. Such 12:39:41 is not always understanding the rules 12:39:43 of engagement or understanding what I'm 12:39:45 supposed to do interactively. 12:39:55 Our final area here, the restrictive 12:39:57 repetitive patterns of behavior, pretty much 12:40:00 what it says. This is where kids 12:40:02 engage in those repetitive types of 12:40:04 behaviors where they might really have an 12:40:07 intense desire for routine or an item or a 12:40:10 subject or an object. I know I spoke a little 12:40:14 bit about the organizational problems, 12:40:16 but they can also come into play under this 12:40:19 subcategory as well. They might get a little 12:40:22 bit more focused on the actual details of a 12:40:25 situation, as a post 12:40:28 -- opposed to seeing the overall situation. 12:40:31 Most of us who don't have autism go into a 12:40:34 situation, and often, we are kind of looking at 12:40:38 it as a whole, and then from there, we are 12:40:41 reducing it down to maybe more specific 12:40:44 details, where as in many cases, folks with 12:40:46 autism are doing the opposite, kind of 12:40:49 starting with the details, and then kind 12:40:52 of expanding into the hole from there. Unless, 12:40:54 of course, someone has been working on 12:41:00 with them how to do a social autopsy of sort. 12:41:04 So now what? We talked about having a 12:41:07 better understanding of what ASD is, how people 12:41:10 are diagnosed with autism spectrum disorder 12:41:12 disorders and so on. Now I want to take some 12:41:15 time to share what I called general 12:41:18 strategies, because everybody's situation is 12:41:20 going to be a little different. These are 12:41:23 just strategies that we know are out there in 12:41:26 the research, that typically come up time 12:41:28 and time again in bits of pieces of research. 12:41:32 These are things to think about using with 12:41:34 children with autism. First of all, again, tap 12:41:38 away into that thinking. Be clear with your 12:41:40 expectations. If you want them to do 12:41:43 something, be clear with how you stated. Also, 12:41:46 really be looking at maybe providing some 12:41:48 visual structure, visual support for them. 12:41:56 It almost sounds silly sometimes for people to 12:41:59 hear, especially with our higher functioning 12:42:01 individuals that have autism, but very often, 12:42:04 if it is something that is newer to them, or 12:42:08 something they are unfamiliar with, we 12:42:10 might have to include some visual pectoral 12:42:12 based information, some video-based information 12:42:14 in order to really get them to understand maybe 12:42:18 what we are trying to present to them. 12:42:20 Again, people with autism are no different 12:42:23 than people without autism, they like to 12:42:26 make choices too. And reinforcement can be 12:42:28 a huge thing, again, for any of us. A lot of 12:42:32 times, are individuals with autism might need a 12:42:35 little extra motivation, because again, that 12:42:37 little mindedness kicks in. 12:42:39 They might get stubborn and not want to do 12:42:42 something, so we may have to, again, provide 12:42:45 choices for them and figure out what are they 12:42:48 willing to work for, and provide extra 12:42:51 reinforcement to get the more motivated. 12:42:53 I do want to caution you here, be careful 12:42:56 read some of our folks get so into a subject 12:43:00 that we may actually be self sabotaging our 12:43:03 situation or their situation by letting 12:43:05 them. So be really careful 12:43:07 depending on the individual. 12:43:08 If you have difficult tasks 12:43:12 , or maybe even newer ones, I would have 12:43:18 ... Think about having an 12:43:19 easier task, or maybe they would -- when they 12:43:23 would 12:43:26 already master as a backup. Sometimes when 12:43:29 they are navigating these difficult tasks, 12:43:31 they may get into that behavioral mode where 12:43:34 it is getting really tough for me to even 12:43:37 figure this out, I am having a tough time, I'm 12:43:41 not able to figure it out, it starts 12:43:52 building and I am about ready to blow my top. So 12:43:56 having that easier task might make it easier for 12:43:59 you as their support system or their support 12:44:02 people to kind of move them away from that 12:44:05 difficult task and say, "let's go do this is 12:44:09 your test for a little while. We can always 12:44:12 kind of come back, maybe even with a new plan." 12:44:16 Certainly make the task meaningful. This should 12:44:18 go without saying. But for folks with 12:44:21 autism, again, mostly because of their 12:44:23 mindedness. I don't know how many 12:44:25 times I've been in classrooms with our kids 12:44:28 and they have told some of their kids to 12:44:31 straightaway, "I already know this stuff. I 12:44:34 remember sitting in a math class with the 12:44:37 young man one time, and he was really good at 12:44:41 math. I cannot say for sure, 12:44:43 but he might have even be better than the 12:44:46 teacher that point in time. So hi math 12:44:49 achiever. And this is one of the 12:44:51 things the teacher was struggled with at the 12:44:54 time was to keep them focused and motivated to 12:44:57 do his work, because, truthfully speaking, he 12:45:00 already knew how to do that stuff. Anytime you 12:45:03 have unfamiliar, Oregon, newer tasks, you want to 12:45:06 try and introduce them in the environment where 12:45:09 they are going to be used first, or the most. 12:45:13 Once again, this is mainly due to that 12:45:16 literal way of processing that many of 12:45:18 our folks with autism convey. When we are 12:45:21 using prompting, we also want to be really 12:45:24 careful with how much prompting we are giving 12:45:27 an individual with autism, because 12:45:29 sometimes, we can get into a routine or mode 12:45:32 ourselves where we are over prompting them, and 12:45:35 in essence, creating dependency. We are 12:45:37 creating a dependency within the person on us. 12:45:40 I have seen too many of our older individuals 12:45:44 who have been kind of prompted almost through 12:45:46 their whole entire life because they were slower 12:45:49 processes. That is a common trait 12:45:52 for many of our individuals with autism. 12:45:54 They tend to process things at a slower rate. 12:45:57 But because the other individuals, the support 12:46:00 people, are not able to wait, they had maybe a 12:46:03 time limit, we have to hurry up and get through 12:46:07 this, they would often end up giving this young 12:46:10 man in particular, they would give him the 12:46:13 answers and just kind of lead him along. So he 12:46:17 just sat back and waited, and he got into 12:46:20 that behavioral routine. If you are going to use 12:46:24 verbal of any type, I would probably keep it 12:46:27 short and sweet. Try and avoid any long 12:46:30 strings of wording or sentences, or... I have 12:46:32 been around situations where a child with 12:46:35 autism was being disciplined, and the 12:46:37 nature of the beast is for the adults to say, 12:46:40 "do you know why you did that? You shouldn't do 12:46:43 that because of X, you shouldn't do that 12:46:46 because of why. To the adults it makes 12:46:48 perfect sense, but the child with autism 12:46:50 probably change you out somewhere in that first 12:46:53 sentence. And all of a sudden, you 12:46:55 start sounding like... For those of you who 12:46:57 remember Peanuts are Charlie Brown, their 12:46:59 teacher. This is really 12:47:00 important. When you had 12:47:16 some misbehavior with kids with autism. We 12:47:19 want to make sure that if we redirect their 12:47:21 behavior, number one, we are doing our very best 12:47:24 to remain as calm as possible, because if you 12:47:27 get yourself all spun up, chances are pretty 12:47:29 good that person with autism is going to feed 12:47:32 off of that behavior, and they will get 12:47:34 themselves spun up. It will go up and up and 12:47:38 up. So we have to be really 12:47:40 careful, and if you are redirecting a person 12:47:43 with autism, and I have experienced this many 12:47:46 times in the past as well, where they are 12:47:49 told, "no, you cannot do that. That is... You 12:47:52 cannot ever do that. Again, not a bad thing 12:47:56 to do, but you need to back that up with 12:47:59 sharing that person or directing them 12:48:02 over to something they can do, or how can they, 12:48:06 if it's a problem, how can I solve this 12:48:09 problem? Because remember, if you 12:48:11 tell them no, chances are good that they will 12:48:14 stop, at least temporarily. But then 12:48:16 when I get them reengaged into maybe a 12:48:19 similar task or the same task, now they are still 12:48:23 in that same behavioral pattern where they don't 12:48:26 know what else to do. So we have to be 12:48:29 cognizant of that as well. For folks that 12:48:32 have a tough time transitioning, using 12:48:34 things like visual cues, any types of visual 12:48:37 supports, timers, just really to give them that 12:48:40 beginning. This is when a task is 12:48:43 going to begin, this is when it will end. If we 12:48:47 are using a visual schedule, we can orient 12:48:50 them to the visual 12:48:53 schedule, let them know if they finish this 12:48:56 test, what do they have to do next? Folks with 12:48:59 autism tend to learn best visually. And I 12:49:02 know I am probably preaching to the choir 12:49:05 for the most part, but they tend to be very 12:49:09 visual learners, so even with your timers, you 12:49:12 probably want to try to keep your timers is 12:49:15 visible -- visual as profitable -- possible. 12:49:17 I will open to questions, but before I 12:49:20 do that, here's my contact information. The 12:49:23 numbers you see on the screen, the phone 12:49:26 number, one of our main line numbers over there 12:49:29 at our center at UCF, the email, again, kind 12:49:32 of our main email, so if you need to contact our 12:49:36 center for anything, go ahead. You can use 12:49:39 either one of those. Our website is a peer. 12:49:42 Feel free to go on that and explore around. I 12:49:46 put my email here as well. I'm the only 12:49:49 person from our center that covers Brevard 12:49:52 County. So chances are good if 12:49:54 you have questions specific to Brevard, I'm 12:49:56 the guy they will put you in cut -- touch with 12:50:00 anyway. 12:50:03 If your kids are not signed up yet and you're 12:50:07 looking to get them signed up with our 12:50:09 center, the best methods to use would probably be 12:50:13 either to go in and called the phone number, 12:50:16 they will get you signed up over the phone, or 12:50:20 you can go to our website, and on our 12:50:23 homepage, you can scroll all the way to the 12:50:26 bottom of there should be a register button